A little boy who was told he’d never walk has taken his first steps with the help of a walker and triumphantly walked into nursery school.
Bleu Greenwood, from Leicester, was diagnosed with the most severe form of cerebral palsy at just 4 months old. He suffered uncontrollable jerks and struggled to hold his own head up as his muscles were very weak.
Given the low success rates of surgeries on stage five cerebral palsy, Bleu’s parents were told their son wasn’t eligible for NHS-funded surgery and he would be resigned to a wheelchair for the rest of his life.
Bleu’s parents, Rielle Chapple and Dale Greenwood, refused to accept his prognosis and started researching private treatments. They were determined to give their son the best possible chance of overcoming his disability.
His mom revealed she knew ‘something wasn’t right’ a few hours after he was born on August 27, 2015, at Leicester Royal Infirmary. “He was doing weird jerking movements and I knew something was wrong. Then when he was 10 days old he started having seizures.
“By the time he got to four months he wasn’t hitting any milestones and that’s when we got the diagnosis. They said it was the most severe case of cerebral palsy and said he’d never be able to talk. But they also said even with surgery he’d never walk.”
With time, they managed to raise £10,000 so Bleu could have surgery to correct nerves in his spine which were sending abnormal signals to his muscles, causing them to contract and stiffen.
In June, Bleu had the procedure called a selective dorsal rhizotomy at a hospital in Nottingham. After 5 months of post-operation physiotherapy, Bleu was finally able to take his first steps on November 13.
“It was the most emotional moment of my life. It was so lovely and overwhelming to see because we never ever thought it would happen. It just shows how determined he is and we are so proud of him.” His mom recalled.
“We all had a massive celebration when he did walk for the first time. Everyone was crying because it was such a happy moment. And you could see how happy it made him.” She added.
A day later, Bleu stunned his friends and teachers by triumphantly strolling into nursery with his walking frame.
Little Bleu, has also battled pneumonia, staphylococcus infection and sepsis twice, but he has always come out victorious. “He is very severe and does have a shortened life expectancy. For us we just want to make him as happy as we can for as long as we can. I want to make him smile as much as we can. The operation has made him more independent and has improved his quality of life massively.” His mom said.
What a tough little champ you are Bleu!