A young father with an extremely rare form of cancer is desperate to travel to the States for life-saving treatment.
30year-old Chad Alexander is suffering from Renal Medullary Carcinoma (RMC), a highly aggressive and rare form of cancer. Reports say the cancer is found almost exclusively in young patients with the sickle cell trait.
Currently, the NHS can’t fund the treatment Chad requires and the only two other people in the UK he has found with the cancer had to fund their own treatment and one of them already passed away.
Talking to Metro, Chad who is a self-employed DJ/educator revealed the effects the diagnosis has had on him. “There’s practical stuff like not being able to work, of course. Emotionally, just knowing you have cancer by itself is bad, but figuring out it is this type of rare cancer is terrible.”
Chad lives in Basingstoke with his partner Anita who is a children’s nurse and their children Rome, 4, and Milan, 1. The dad of two reveals he has been unable to work since he got sick.
Chad is now fundraising towards a £50,000 goal in order to access life-saving treatment at the MD Anderson Cancer Center in Houston, Texas, the only place in the world he has found that has successfully treated a patient with the cancer.
On his fundraising page, Chad recalls how his life was turned upside down since he first noticed blood in his urine in June. Doctors found tumors in his kidney and lung, which required a six-hour surgery to remove them, along with his left kidney, spleen, the tail of his pancreas and part of his diaphragm.
After receiving the devastating diagnosis, Chad scoured the internet for more information on this disease he knew nothing of. Through his research, Chad got in touch with Cora Connor, who set up the outreach organisation RMC Support after her brother was diagnosed with the condition.
Cora recommended the doctor who had successfully treated her brother as Chad’s best medical chance. However, just an initial appointment with his specialist costs $25,000USD and that is before treatment, flights and accommodation.
Along with the money for his treatment, Chad hopes to raise awareness of this devastating disease. “I need to raise awareness about it, particularly for people with the sickle cell trait.
“I have had lots of conversations about it with people living with it, or partners of those who’ve passed away. I do not know whether anyone is as visible as myself. I need to get to get the treatment and get better, but also to use this as a platform.” Chad said.
If you can help in any way, please find Chad’s Just Giving crowdfunding page here.
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